My daughter could die": family denounces that EPS does not provide medication to young woman with rare disease
Anguish has taken hold of a family in the Barrios Unidos locality, in Bogotá, where the parents of a 17-year-old girl denounce that their daughter, diagnosed with a rare disease, has gone more than a year without regularly receiving the medication she needs to protect her body from serious infections.
TL;DR
- A 17-year-old girl in Bogotá has gone over a year without regular access to essential medication for a rare disease.
- The rare disease prevents her body from producing antibodies, making her highly susceptible to severe infections.
- Her parents report repeated delays in medication authorization, with orders expiring and incorrect codes being generated.
- A court order (tutela) exists, mandating integral care and copay exemptions, but has not resolved the issue.
- The teen's health has worsened, and doctors have recommended hospitalization to potentially administer medication via emergency means.
- The family has encountered situations where authorized medication was denied at the health provider institution (IPS).
- The family is pleading with EPS Famisanar to comply with the court order and provide the necessary treatment.