Is there a shortage of money to treat rare and high-cost diseases?
Going to the pharmacy turned into Russian roulette for Andrés Mercado*. Sometimes he returns home with his complete prescription; other times,...
TL;DR
- Medication access for rare and high-cost diseases is unpredictable.
- Patients experience uncertainty about receiving full prescriptions.
- The situation is compared to playing Russian roulette.
- There are challenges in ensuring consistent treatment availability.