“The EPS was responsible for killing my son”: mother of Kevin, the boy with hemophilia who died waiting for medicine
Kevin Arley Acosta, a 7-year-old boy suffering from hemophilia, passed away on February 13th after two months without receiving the vital medications required for his treatment.
TL;DR
- Kevin Arley Acosta, a 7-year-old boy with hemophilia, died on February 13th.
- He had not received his vital medications for two months prior to his death.
- The Nueva EPS is identified as responsible for the interruption of his treatment.
- His mother, Katherine Pico, pleaded with the EPS for urgent medication and care, but her pleas were not effectively addressed in time.
- Hemophilia is a rare disorder where blood does not clot normally, requiring continuous specialized medication.
- The case is part of a growing number of instances revealing failures in the healthcare system, especially for patients with high-cost and specialized treatments.
- The mother blames the EPS for her son's death, stating they 'killed my son'.
- The situation underscores issues in the authorization and delivery processes for orphan or rare disease medications.