They took away his medication and today he is at risk: child with hemophilia fights after two months without treatment
The case of Kevin Arley Acosta exposes the situation faced by patients with orphan diseases amid the health system crisis.
TL;DR
- Kevin Arley Acosta, a 7-year-old boy with severe hemophilia, is in critical condition in Bogotá.
- He has not received his essential medication for two months.
- His health deteriorated after a bicycle accident, as his condition prevents normal blood clotting.
- The lack of medication is reportedly due to an administrative issue between the Nueva EPS and an IPS.
- His case highlights the difficulties faced by patients with orphan diseases in accessing continuous treatment.
- Health authorities are being called upon to protect the rights of children amidst the health crisis.